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Caring for the carers: new long-term study looks to improve support

Rural dementia carers find support hard to come by, phone numbers hard to find and often feel that local clinicians aren’t always helpful.

The head of La Trobe’s John Richards Centre for Rural Ageing Research, Professor Irene Blackberry, said: “Often the processes are confusing and services are insufficiently linked up, making it a challenging experience for some carers.”

It is because of this that Blackberry and LaTrobe University have launched a three-year study in Bendigo, looking to improve access to local support.

“This study aims to come up with innovative solutions, to ensure dementia carers feel supported and in control while they navigate life after the diagnosis of a loved one,” Blackberry said.

Blackberry spoke with Aged Care Insite about the study.

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2 comments

  1. As the daughter of a mother (79 years) who has Dementia and a father (80 years) who has taken on the carer role I have found there is little help for people who are in this position in rural areas. My parents live outside Maryborough (Qld).

    I have been working in the aged care sector for approximately 40 years and know that unless you know how the system operates in regards to aged care it is extremely difficult to navigatem, confusing and frustrating.

    I also would like to mention that the new rule of carers having to supply financial information to continue receiving the carers allowances from July 01, 2019 has caused my father a great deal of angst and he refuses to complete the requested details. Dad will be another unpaid worker for the government keeping mum out of care for as long as his health holds up and he is able to keep going. Very distressing that we are not looking after the carers (unsung heroes) in our society.

  2. A 3 year study is not helpful for current carers.